RARE Science is a non-profit research organization, that through a unique collaborative approach, works directly with patient families and foundations to find more immediate therapeutic solutions for children with rare disease.  Christina Waters is a medical geneticist who started this program which also provides handmade “RARE Bears” to children, around the world, with rare diseases.  There are approximately 200 million kids worldwide that have rare diseases – 35% of these kids do not live to see their 5th birthday. RARE Science is working to improve those statistics and change the lives of children with rare diseases.

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Here is a video which shares insights about making these bears:

If you have problems viewing this embedded video, here is a link to watch it directly in Youtube: https://www.youtube.com/watch?v=axMXUuMLxEI

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Volunteers are needed to join the RARE Bear Army and there are a variety of ways you can help.

RARE Science is teaming up with The QuiltShow.comSpoonflower, Simplicity Patterns, Fairfield World and an army of volunteers to bring to life these wonderful companions for kids with rare diseases.  Volunteers of all skill sets to enlist in the #RAREBearArmy. For more information on how to get involved or if you would like to donate a bear to a child in need – please visit us at our website: http://www.rarescience.org/rare-bear-program/

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For those attending Quilt Festival/Houston there are a couple of opportunities where you can also help:

rare-bare-stuffing-partyConsider giving your feet a rest and helping to stuff a bear.  All supplies will be provided, but volunteers are needed to help stuff and finish bears.“Stuff – in”, called “A Beary RARE Affair” get together. On Friday, November 4th from 6 to 8pm, 200 participants will stuff a “bear skin,” mingle with celebrity bear makers and have a chance to win a BERNINA Simply Red sewing machine!  On display will also be our one of a kind collector Celebrity RARE Bears that will be part of a silent auction held during the Festival.  To RSVP for this event, sign up here: http://www.rarescience.org/beary-rare-affair-event/

 

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The Quilt Show is hosting an Auction of Celebrity RARE Bears made by Becky Goldsmith, Jamie Fingal and Sue Bleiweiss during the RARE Bear Affair in Houston.  They’ll also be displayed in the RARE Science booth Nov 2nd – 6th.  Non-Attendees will be able to bid online at:  https://www.charityauctionstoday.com/auctions/rare-science-celebrity-bear-auction-944

Volunteers are always needed to make RARE Bears using the Simplicty Pattern #C5461.  You can make complete bears, or the bear casing that gets stuffed by others.  Of course you can do this by yourself, but you may want to host your own RARE Bear Party and invite your quilting and sewing friends.  This would also make for a great guild event!  rarebearpattern

You can also donate fabrics, stuff bears that have been premade, cut fabric, as well as help fund materials.  Simply contact Rare Science and let them know how you would like to help and find out what might already be in place in your area for this program.  You should be able to find this pattern in any store that sells Simplicity patterns, but you can also order it online from Simplicity

Downloadable flyer with more info about the RARE Bear Project: https://thequiltshow.com/images/pdf/1111.pdf

You can find Rare Science at:

www.rarescience.org
https://twitter.com/rare_science
https://www.facebook.com/RAREScience/?fref=nf

 

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